James W Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Luz Sousa Fialho, Action Amos, Joan K Austin, Scott Badzik, Gus Baker, Bruria Ben Zeev, Jeffrey Bolton, John E Chaplin, J Helen Cross, Derrick Chan, Christian A Gericke, Aatif M Husain, Lorraine Lally, Sharon Mbugua, Cassidy Megan, Tomás Mesa, Lilia Nuñez, Tim J von Oertzen, Emilio Perucca, Angie Pullen, Gabriel M Ronen, Martha Sajatovic, Mamta B Singh, Jo M Wilmshurst, Leonie Wollscheid, Anne T Berg
At present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. The International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy, and their representatives to develop minimum sets of standardized outcomes and outcome measurement methods for clinical practice. Using modified Delphi consensus methods with consecutive rounds of online voting over 12 months, a core set of outcomes and corresponding measurement tool packages to capture the outcomes were identified for infants, children, and adolescents with epilepsy...
May 17, 2024: Epilepsia